One Week Home
It’s been a week (and 5 days). A discombobulating find your footing, or at least try to, type of week. Exhaustion, symptoms and questions. My brain has tried to make sense of returning home, back to a familiar location, but still another rotating change of dwellings since last July. A great deal of daily information swamped us during the four weeks in Tennessee, and now we had to make sense of it, and try to wisely make plans on how to move forward. Day one climbing my own stairs was bleary as I felt the fatigue dragging me with just one foot out of bed. But, how simple, yet how very, very helpful, to see the tiny plastic cardinals Angela and my Mom had placed on the light fixture, on the window sills, and on the door jams. Uncertainty definitely grabbed my head on with day one, but reminders of God’s presence were literally “in my face” as I made my way into the day. Remember, remember… he’s led you this far and he’s still with you.
Caleb worked on me osteopathically Monday morning, and not surprisingly said my liver felt like a very full wet sponge. So many yucky things were trying to make their way out of my body, and the congestion and “hopefully” success of treatments were causing a back-up of elimination that my poor liver was fighting to purge. Energy levels, breathing, vitality, organs … were all struggling, but thanks to Caleb’s gentle hands were persuaded that day and on other treatment days my first week back, to gain some momentum.
Monday afternoon I went for a 3D conebeam xray scan of my jaw. This was step one in moving the ball forward in how and where it might be possible to eliminate the metals from my head that are potential instigators for the cancer. I spoke with the doctor there. He is willing to advocate on my behalf in reaching out to a colleague of his who does Oral and Maxillofacial Surgery at Mount Sinai Hospital in Toronto. I will not receive the results for this scan until March 26th, but was given copies to forward to the recommended clinics in Switzerland and Costa Rica. There would likely need to be obvious damage (granulation) to my jaw for OHIP to be willing to remove the plate and wires. The guidelines in Canada are extremely restrictive and there is concern they will not take metal allergy or metal galvanization into consideration, even though such cases are widely practiced in the States and Europe. Having the surgery done in Canada would eliminate my concern for the fibrin in my blood and how it would be detrimental for flying. Both long distance clinics have confirmed receipt of my Xray and I have a virtual appointment scheduled with a doctor at the Costa Rica clinic for mid-April. Currently I have not received feedback from Switzerland.
Next Monday I will meet with our family doctor to discuss how I might move forward in our medical system. As MRIs are not possible due to the metal implants, we hope to find out if there are other recommended scans which would help keep track of me here. I am hopeful with bloodwork to keep track of the micro-clotting in my blood. Repetitive bloodwork will help give insight into whether travel will become possible. Removing the jaw plate seems to be the highest priority, so getting my body able to travel and strong enough for this surgery is key.
I’ve had a lot of symptoms since being home. It’s tough. A lot of skin burning, reactions to meds and food, exhaustion, breathing issues, and pain. Am I experiencing any relapse from the house (is there still mold?), or is it just a fall out from the toll medical treatments took on my body. Is it a detox, and YAY, that means I’m on the road to getting better, or is it the opposite. Keeping mind and body optimistic is challenging. Especially with being out of the medical clinic and back staring at your own “four walls.” I have been given a full course of Phage Inducens from the clinic which are formulated to target the cancer. So this treatment will be ongoing for the next three weeks. I have also been sent home with a full regimen of support treatments for the Lyme, Mold, MCAS, and other areas of concern. Although Tennessee was immensely challenging, we without a shred of doubt felt God’s hand in so many moments and decisions. Please continue to pray for my absolute healing, strength for my body, and peace of heart, mind and soul.
It’s been beautiful to be home and with family again. Apologies for not bringing the spring flowers, weather, sunshine, and blooming fruit trees back from Tennessee. The view out my window has been blustery as opposed to beautific. But home is home, and the sun will come out, maybe just not today.
I will send updates as they occur or are needed. My gratitude for all your prayers and faith in my healing as the journey continues.
Sent to me this week - Katy Nichole - "In Jesus Name (God of Possible)"
I speak the name of Jesus over you
In your hurting, in your sorrow
I will ask my God to move
I speak the name 'cause it's all that I can do
In desperation, I'll seek Heaven
And pray this for you
I pray for your healing
That circumstances would change
I pray that the fear inside would flee in Jesus name
I pray that a breakthrough would happen today
I pray miracles over your life in Jesus name.
I speak the name of all authority
Declaring blessings, every promise
He is faithful to keep
I speak the name no grave could ever hold
He is greater, He is stronger
He's the God of possible
My Mother’s Humor. The very rare Cardinal Clivia Plant.
Emma Blount - Artist